Hello all,

Just to get some convo going, Please share with the community what your average day is like and what your favorite part of the day is. For me its when i leave work n land on my bed

I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis nearly every day. I can probably only tell you about 3-4 days I was pain free. I have plowed through so many pain pills and I ended up in the ER once. Because I work full time, 40 hrs a week and I’m in school 3 hours a day, I am always on the go, so I try my best to push through the pain and get on…

Hello. My husband and I just adopted our precious son, Markelle Isaiah, who has SCD, SS.  He's 3 weeks old, so he hasn't had any symptoms yet.   We didn't know much about SCD until Markelle joined our family, but we've done tons of research and get the basics of the disease.  More than anything I would love to connect with people who are actually living with SCD and tips from parents of SS children.  I'm feeling a little lost.  Thanks, Erika