February 2010 Blog Posts (8)

Sickle Literature

Hey Fam, any of you know where I can get lots of sickle cell literature, for example, pamphlets, brochures, etc? Anything related to sickle cell to put up in doc's offices and other places.

Thanks,

Marcus

Added by Marcus McKinley on February 28, 2010 at 4:08pm — 8 Comments

Faces of Sickele cell

Hello comunity,

I'm making a poster/ flier to spread the word about this site and I needed an image that would apeal to people to put on it.



I didnt want to put a picture of red blood cells so i was thinking about making a montage and i was wondering if you could use some you YOU!



Please let me know if you would be interested. The poster is only going to be at my hemoc clinc , no online, however when Im finshed I would gladly put it up so you can put it at your hemoc… Continue

Added by Bukky Ade on February 28, 2010 at 12:28am — 3 Comments

Smile through the pain.

Hello everyone, i want to share this with you.. This morning i was terribly weak due to last night crisis and i got a whole lot of stuff to do and i watchd my clock tick by... Honestly,it wasnt funny at that time cuz i still have roughly 2hrs to hit the road,so i relaxed... By the time i looked at my time again,i knew its time to get ready but i have a problem,the strenght is yet to COME! What the hell? I drag my body out of the bed,said my prayers and hit d bathroom(it took me more than 35mins… Continue

Added by Luchy on February 26, 2010 at 12:58pm — 1 Comment

Busy Day

I got a busy day today and i'm terribly weak... Its almost bright and i need to be there. Any encouragement? Cuz i need my spirit to be lifted. Arghhh!

Added by Luchy on February 25, 2010 at 10:50pm — No Comments

SCD National Advocacy at the Capitol

Hey Fam.... I just thought I would let you all know that SCD Associaton of America will be having the 2nd Annual Advocacy Day at the capital in Washington DC. I went last year and we advocated for sickle cell all day at the capital. We talked with our legislators and others. Other SCD state chapters attended as well and you all get to meet others with sickle cell or others that are motivated by this disease in some kind of way. It is a great experience. It is March 25th, 2010 in Washington…

Continue

Added by Marcus McKinley on February 21, 2010 at 11:15pm — 3 Comments

My Brother has sickle cell and he is also a heroin ADDICT

I AM SO HURT MY BROTHER 43 HAS SC AND HE SNORTS HEROIN JUST ABOUT EVERYDAY. HE SMOKES CIGARETTES BECAUSE OF THE HEROIN. AND IM AFRAID THAT HE FEELS HE WILL DIE AT THE LIFE EXPECTANCY AGE IN HIS 40"S ANYWAY- I WISH I KNEW HOW HE FELT ABOUT THAT. IS THERE ANYONE THAT HAS OR KNOW OF SOMEONE THAT TURNED TO HEROIN BECAUSE OF THEIR ADDICTION TO PAIN MEDS?

Added by KMO on February 20, 2010 at 11:06am — 2 Comments

Maurice introduces himself to the community

Hello everyone on the People living with Sickle cell website. I am a new member who has been very surprised to find this site. I was completely blown away with all the info on the site. I have been living with Sickle Cell Disease for 40 years suffering pain crisises for 38 of those years. I arrogantly believed that I knew everything about my illness but in the last few months I've experienced things that had never happened to me before and started searching the internet for more and more info.… Continue

Added by Maurice Lamount Alford on February 19, 2010 at 1:28am — 9 Comments

The Cold Was So Worth It: Mardi Gras 2010

Just got back home from New Orleans Mardi Gras was fun, but still lacking. I'm from New Orleans and Mardi Gras is something I grew up with. It's not the same like it was before Katrina. And the city looks awful in some parts and even the nicer areas has its share of boarded up houses. Not as many but you see them. On Bourbon, in the Garden District, the 8th ward which is where my mothers family is from. New Orleans East which is where I grew up looks empty. And oh man the lower nine is pitiful.… Continue

Added by Nana007 on February 18, 2010 at 12:05am — 1 Comment

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