Ali's Posts - Sikcell: People living with Sickle Cell2024-03-29T15:25:16ZAlihttps://sikcell.com/profile/Alihttps://storage.ning.com/topology/rest/1.0/file/get/1956903436?profile=RESIZE_48X48&width=48&height=48&crop=1%3A1https://sikcell.com/profiles/blog/feed?user=2459r668xto48&xn_auth=noDoes swimming trigger a crisis?tag:sikcell.com,2009-08-18:2131823:BlogPost:73012009-08-18T18:17:09.000ZAlihttps://sikcell.com/profile/Ali
Hello All,<br />
I noticed from a young age that any time I went into a pool I got a crisis. I am not talking about showers and tub baths. I would like to hear from the rest of the community. It is very frustrating, especially now because it is summer in the northeast United States. I live in a development with a heated pool. I have gone in for five minutes, but I don't dare to stay longer than that.<br />
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I took swimming lessons last september, but I had to stop because although the pool at the Y is…
Hello All,<br />
I noticed from a young age that any time I went into a pool I got a crisis. I am not talking about showers and tub baths. I would like to hear from the rest of the community. It is very frustrating, especially now because it is summer in the northeast United States. I live in a development with a heated pool. I have gone in for five minutes, but I don't dare to stay longer than that.<br />
<br />
I took swimming lessons last september, but I had to stop because although the pool at the Y is supposed to be heated it was still cold. I ended up in the hospital. I love the feeling of being in water. I am not concerned about getting my hair wet because it is wash and wear.<br />
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Please I want to hear back from you on this subject.<br />
<br />
AliKeeping the Faithtag:sikcell.com,2009-06-26:2131823:BlogPost:55032009-06-26T21:00:39.000ZAlihttps://sikcell.com/profile/Ali
Hello All,<br />
<br />
I wish that we could schedule a time when we sign on and chat about whatever is on our minds. Is anyone else interested in this idea? I like reading the comments, but I would like something in real time. I realize that we are all over the world, but some nights I am up late when I can't sleep.<br />
<br />
The title of the blog is keeping the faith, but somedays are harder than others. I know that I am blessed. I haven't had a stroke or a hip replacement. However, this disease has affected my…
Hello All,<br />
<br />
I wish that we could schedule a time when we sign on and chat about whatever is on our minds. Is anyone else interested in this idea? I like reading the comments, but I would like something in real time. I realize that we are all over the world, but some nights I am up late when I can't sleep.<br />
<br />
The title of the blog is keeping the faith, but somedays are harder than others. I know that I am blessed. I haven't had a stroke or a hip replacement. However, this disease has affected my life. As a youngster I tried to be normal, but frequent hospitalizations reminded me otherwise. Now as an adult I am not working. I feel isolated. I feel woozy from pain medication. It makes me sad and it is hard to stay positive. I would like to work, but I don't feel well enough. I take naps every day. I am blessed that I can still drive a car. I don't want to ramble so I will close now.<br />
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Bye for now.I miss workingtag:sikcell.com,2009-04-21:2131823:BlogPost:33692009-04-21T22:33:47.000ZAlihttps://sikcell.com/profile/Ali
I became ill at work on May 7, 2008 and was taken to the hospital by ambulance. I returned to the job on May 21 and left again on May 23. On May 29 I received a call informing me that I was fired due to attendance. I have not returned to a job since then.<br />
<br />
I feel isolated. I am only 42 years old. I never had a "profession", but I worked steadily from the time I graduated from college. At one point, I attended grad school for three semesters. My doctor said do you want to be dead with a masters…
I became ill at work on May 7, 2008 and was taken to the hospital by ambulance. I returned to the job on May 21 and left again on May 23. On May 29 I received a call informing me that I was fired due to attendance. I have not returned to a job since then.<br />
<br />
I feel isolated. I am only 42 years old. I never had a "profession", but I worked steadily from the time I graduated from college. At one point, I attended grad school for three semesters. My doctor said do you want to be dead with a masters degree. I could not handle a full-time job and grad school at night.<br />
<br />
I have a high level of fetal hemoglobin, which has protected me all my life. However, it has not protected me from chronic pain in my lower back and hip that began in the fall of 2006. My family tells me that I tried hard. I know that I did. I wish that I could have found an employer that cared and would allow me to work on days when I was well enough to work and not fire me because I was suddenly hospitalized.<br />
<br />
I used to hide my illness from employers when I was younger. I was not prepared to be punished for something beyond my control.<br />
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I have never blogged before. I hope that I did not write anything that I will regret.