Discussions
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Anyone use these products?
https://healingblendsglobal.com/collections/sickle-cellIs it good for those with beta thallesmia minor? I gotta fight to move, I tire down very easily...
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Sickle Cell Travel Hacks
I traveled recently and found myself in a bit of pain from the cold on the plane (I should have known better and brought a blanket or hoodie) I eventually got a blanket and took some medicine and was fine but that got me thinking, what are must do things before/ during and after a flight or any…
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The Hibiscus Study
The Hibiscus Study™ is inviting adults and adolescents 12 to 65 years old with a clinical diagnosis of sickle cell disease (SCD) to take part in a clinical research study. The primary purpose of the Hibiscus Study is to evaluate the safety and effectiveness of an oral investigational medication to…
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Sickle Cell Trials for South Florida residents
Hi my name is RachelI work for a research facility in Miami, Florida. We are very passionate in helping fight the battle against SCD. The current trials are as follows:Duration: 14 weeks Inclusion: Ages 12 to 17 inclusive, and adults over 18, Compensation: $125 per visit and $20 Phone Call. Total $…
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Sickle Cell Patients and COVID-19 Vaccine Adverse Reactions?
Let me preface this post by saying that first, I am specifically interested in hearing the *bad* stories about Sickle Cell patient responses to the COVID-19 vaccines. Second, I'm mostly interested in hearing about adverse reactions to the mRNA vaccines, e.g. Pfizer/Bio-N-Tech's and Moderna's…
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Clinical trial for kids with sickle cell
Hello my fellow sickle cell warriors,There is a clinical trial for sickle cell going on in 11 cities in the US right now. It is for kids ages 5-17 with sickle cell. The trial is testing a new medicine made from fish oil. So far it works well and doesn't have any side effects so please sign your…
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What do you think is a good quick career for black males who aren't physical strong with sickle cell?
What do you think is a good career for those with sickle cell (males)? You know the racism that tends to plaque us in corporate america? Bus Driver or something of that substance, something quick that's not to physically demanding on the body.
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FDA approves crizanlizumab-tmca for sickle cell disease
On November 15, 2019, Food and Drug Administration approved crizanlizumab-tmca (ADAKVEO, Novartis) to reduce the frequency of vaso-occlusive crises (VOCs) in adults and pediatric patients aged 16 years and older with sickle cell disease.Read the full press release from the FDA here:…
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World Sickle Cell Day
The National Institutes of Health, the National, Heart, Lung, and Blood Institute (NHLBI) in the US says they're on track for a cure within the next 5-10 years Here's the article:…
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Cannabis for alternative medicines
Have you ever tried to used cannabis for medical purposes? Sickle cell anaemia can cause a multitude of symptoms to manifest, one of which is pain. The pain is caused by the shape of the cells and how this can cause blockages within blood vessels in the chest, abdomen, and joints. I have read many…
