Blogs

  • What does a cure mean to you campaign

    For sickle cell awareness month this year, the cure sickle initiative launched a campaign on what a cure means to you. See the campaign here: https://curesickle.org/sickle-cell-awareness-monthChime in below and add yours as well! 

    By Ade Dotun

    Sep 15, 2023

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  • Penn Med SCD Contraception Study

    The Women’s Health Clinical Research Center at Penn Medicine is currently recruiting participants with sickle cell disease for a paid study looking at whether participants experience any difference in their sickle cell pain while using a hormonal birth control implant as compared to when not using…

    By Katie

    Jun 16, 2023

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  • Taking Oxbryta? Want to be part of exciting research in SCD and make your voice heard?

    RESEARCH OPPORTUNITYThe ASCEND study is seeking individuals who are taking Oxbryta to participate in a 3 month, app based data collection study. Up to $125 in gift cards will be provided in return for participating.Learn more at …

    By Ade Dotun

    Sep 30, 2022

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  • HAPPY World Sickle Cell Day 2022!

    The Sickle Cell Consortium and Cayenne Wellness Center host “The 3rd Annual 24 Hour Sickle Cell-a-thon Celebration: Sickle Cell Has No Color.” Today 12 AM EST to 11:59 PM EST. They will be sharing the many different ethnicities with sickle cell from around the world.  If you have not had the chance…

    By Ade Dotun

    Jun 19, 2022

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  • Happy sickle cell awareness month! How are you celebrating?

    I’m excited to collaborate with Allstripes as an ambassador, especially in honor of sickle cell awareness month! They provide a comprehensive view of patient health records and research for rare diseases. Check out the…

    By Ade Dotun

    Sep 11, 2021

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  • Sickle Cell Studies in Miami, Florida

    Currently, there are a few different clinical studies for sickle cell disease. Must live in South Florida. To prequalify or to receive more info go to https://sicklecellresearch.com 

    By Rachel Geiger

    May 12, 2021

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  • Sickle cell awareness month 2020!

    Happy sickle cell awareness month Fam! Hope you are all doing well and doing something to help raise awareness this month of September. I did a video collab with the SAMI organization on confidence below, let me know you know your thoughts and what are some things that has helped you to build…

    By Ade Dotun

    Sep 8, 2020

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  • Happy world sickle cell day 2020!

    For world sickle cell day this year, I wrote a blog about tapping into your warrior mentality, check it out and my tweet in the links below.Tapping Into the Warrior MentalityMy life has been characterized by tenacity, perseverance and determination; these values have been instilled in me through…

    By Ade Dotun

    Jun 19, 2020

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  • Birthday wishes

    Thanks Ade

    By Teela Mae

    Mar 31, 2020

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  • FDA approves voxelotor for sickle cell disease

    On November 25, 2019, the Food and Drug Administration granted accelerated approval to voxelotor (Oxbryta, Global Blood Therapeutics) for adults and pediatric patients 12 years of age and older with sickle cell disease.The primary efficacy outcome measure was Hb response rate defined as an Hb…

    By Ade Dotun

    Nov 27, 2019

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