Sickle Cell Warrior

Hi,

I'm from Germany and my sister has sickle cell.
I have been watching you're site for a while. and when you started taking nicosan, and you're health became better,
we started thinking about buying nicosan for my sister. But her doctor said we first should get some actuall research details about the drug or get contact details from doctors who have patiens on nicosan.
Now all the researches I found about nicosan are quite old or they are not finished. And there are no wetsern Labs I found who have been testing the drug.

but because I know that you are on nicosan and its been monitored by you're doctor I would want to ask if it is possible for you to give us you're doctors email adress. Is it may be even possible to ask some other nicosan user
you know if they could give us the contacts of theirte doctor.

Because at the moment it is really criticall with the health of my sister, we don't want to give her bloood every month (because of the ion) and hydrox. is no option to think about.


so please try to help us.
you are the only source I know when it comes to nicosan.



thank you very much





greetings


Allan

I am very interested in trying the nicosan medication if you could provide the infor on how to order this medication it will be greatly appreciated.

Hey Sickle Cell Warrior, thanks.
My son blood level was 4.5 and 2 weeks after was 5. We did another test last week but the nurse made him to much upset and the result was compromised. Yes it's amazing the results of Carao. I'm very confident. About my son blood level I am trying to figure out what type of SCD he has then we can be more peace. I'm in contact with some docs in my country because they have a lot of studies about it.
Again, thank you a lot!!!!
It's good to know that I have some place to talk about it, because I'm getting sick here and sometimes I can't believe that this docs are called specialist.

Thank you for the compliment! My husband and my son are my ROCKS!

Thanks for the comment. I am always happy cos im always smiling. I don't let anything bring me down.

I love ur SC can kiss my ass blog
thanks for sharing and getting me addicted to it and ur writing style
You are very inspiring to me and keep doing what u do and thats kicking SC in the ass .
Ciao

oh yea u can check out my old vlog at youtube called( sicklecellforum)

Thanks.What about all the mosquitoes?How did you cope with malaria?At what age did you start having symptoms?

..can i interview you concerning sickle cell anemia if its alright with you?

THANK YOU !!!!!!!!!!! I PLAY THAT SONG WHEN I FEELING DOWN ....... AND REALLY WANT TO CHAT WITH YOU!!!!! LOVE YOUR PAGE PIC'S AND EVERYTHING YOU DOING YOO ARE WONDERFUL!!!!!!!!!!!!!!!!!!!!!!!.............

Thanks so much for the complement. What helps is I take Vit. E, (1000 mgs.) I've always had long hair, but since taking it, it is very healthy from root to tip, and is now down to my elbows!! Before, it was very dry a brittle. I changed my pic because I wanted to put my little boy on there too. I'm glad I've found this site. I belong to a sickle cell group, well two in Yahoo, and someone mentioned this site, so don't be suprised if you get alot of new members.

You're on yahoo too? which one? I'm on 'sickle cell', led by Betty, and Juanita, and 'The sickle cell forum.' My other name is "Bootoosmom". (LOL) Anyway, I'm glad we BOTH found this site too. So far you are the only one talking to me, but I'm sure that will change soon...hopefully.

My son has been having crisis every 2 months and I am looking @ some other options. I would like to personally speak with someone about nicosan; I have looks of questions. I did go on your website, but I still have some questions. I would appreciate if you or anyone else that has been on Nicosan for sometime to call me.
Jhana Blackwood, Cory's mom 407-209-4289; I am located in Florida, so I am on EST

Hi.I noticed you have been ignoring my comments/posts even when they are directed at you.And i'm wondering if uploading one's pictures should be such a big deal.
In as much as people are encouraged to put a face to their names,i dont think they should be discriminated against based on that.So if i need an information from you that will save my daughter's life,you will with-hold it cos i dont have my pictures uploaded.Too bad!!!

Thanks for the warm welcome. I am so excited to have found this site and I look forward to interacting with everyone.

Much Luv
Trish

Yes I wanted to show the world our suffering at its most vunerable point ...and i wanted to something that i never saw...i think i was the first ever to vlog as an in pt.on you tube or maybe even ever with SS.

Its nice to meet you too!

Hello Sister,

I am a work in progress in learning music theory, with my Bass:-) I love the deep sounds, and keeps me happy! I play with friends, nothing major. But I swear I will post here before anywhere else if I get the courage to make a video. Hey you can also look for me at Facebook.

thank you

i like the way you did your page I need to step up my game. have a good day I hope all is well with you.

thanks for hlpin to get the site out thru ur bog

I CAN'T SWIM THAT WAS THE HOT TUB WHICH I ADORE! I WAS ACHY THAT DAY SO I WENT & GOT IN TO HELP ME OUT SO MY BDAY WOULDN'T B RUINED. BUT TRUST I'M NOT JUST GONNA BE TAKIN UP SPACE U WILL B HEARING FROM ME!!:)

hey im havin a hard time uploadin any of my photos using the email address they gave me...maybe u can tell me what im doin wrong

thanks for the welcome and i will keep in touch if i need any help thanks

The Sickle Cell Documentary You have posted are seeking those suffering from Sickle Cell Disease but they do not have to be local to Los Angeles California. Those wishing to share their stories and are chosen will receive a trip to Los Angeles for the interview. Just FYI....

All For LOVE!

Hi Sickle Cell Warrior, I am new to this blog and I have a question. I just learned that I may have Pulmonary Hypertension with my sickle cell. Do you know anything about it? I'm really scared about the stats that I've read online about the prognosis for people with Pulmonary Hypertension and Sickel Cell. Thanks in adavance for any comments.

Thank you, nice to meet you & you have a great Thanksgiving also !

hello,mery christmas.wld like to send you some enquiry about nusing degree in the united states.pls send me ue email or call me on +8615261888619. i ma now in medical school in china.pls remember me in ur prayers.reagards to ur family.

Just for being you

im 18 and you are right i really haven't been long

Nice profile picture!

hello, how are you? i really need help, i do not have sickle cell but i am working on a project that requires me to research this disease and gather information and first hand accounts. i have gathered quiet a bit of information over the net but i would love to talk to people who must cope with this disease on daily basis.

its great to be here. Hi everyone. I am new to the site. I am so excited to have found you guys. I am Jamie. I am a registered nurse living in georgia. 30 years old. recently divorced. 2 precious little girls. i love the Lord. He is everything to me. I have sickle cell, it does not have me.--Jamie

Thank you!! I'm doing well, just busy with work and managing my health. I'm thinking about entering a masters nursing program soon.... still undecided. Hope all is great on your side as well :)

hello lady...lost my little brother last weekend after 15yrs of fighting sickle cell. So sad but what can one but but keeping on fighting...hope u r doing okay.

THANK YOU SO MUCH .. AND MANY BLESSING YOUR WAY .. OH AND IM LOVING THE VIDEO'S KEEP THEM COMING...

Oh cool! did u get my last question on e-mail?

Hi my name is Veon. Ok Can you PLease read my Diccussionand give me some advice? Um on 4 19-10 i went to the hospital and i got poked 7 differents times we had aked my doctor for a port because my veins are so bad and she told my mom no because it'll do more harm than good but im tired of every time i go to the hospital being poked so many times in the the e.r. one guy infultrated the vein in my mucsle and i t hurt for days. So in Your oppion what should i do?

No problem..i like the new site