Teens

Discuss any issues/concerns that apply gennerally to us "young adults" with SCD.

How does sickle feel affect your relationship with your "healthy" friends?

How does sickle feel affect your relationship with your "healthy" friends?

do they understand or do you hide it from them?
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    Bukky Ade

    At my old school pretty much everyone knew but i just changed schools and no one really knows,,,ive already missed alot of days and when i was i was sick they think im lying, like " you cant be sick all the time" or they say "you have a dr. appt every week?"
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      ssebandeke ashiraf

      IT is quite difficult i have to tell a few of them whom i trust most that am suffering from sickle cell otherwise some run away from me
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        Diana Arevalo

        I used to hide it from my friend through out school. If I could help it I wouldn't tell them anything. But currently I am at the point where I need my friends to know so they can give me a ride to the hospital since im living in college. Two crisis later and everyone thinks that it is my fault and that I am self destructing. If they only knew that sometimes its out of our hands and that the crisis are common and can occur within weeks from each other. I have never been in the position where sickle cell has affected my relationship with people so strongly. Their lack of knowledge and understanding makes me look like I am the bad guy out to ruin my own life. I am very cautious, i drink plenty of water, avoid harsh climates, dont do a lot of exercise, i live a healthy lifestyle that includes a social life. But everyone sees me as a little glass doll that can fall apart at the slightest touch. Its frustrating me.

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