Where is the majority of your pain

by Sharolyn Hutchinson

Mar 29, 2010

My daughter has the majority of her pain in her legs so it is hard for her to walk when she is in crisis. Does anyone else have this problem, it makes her life very difficult. For the past 2 years she has missed so much school. She goes to school for three weeks and then she out for two weekks, I took her to the dr and they say her blood work is good. I took her to a pain management specailist and they said she is very strong and doesnt need any stroner medication. They gave her a medicine for seizures(gabapentin) that is suppose to make her nerves less sensitive to the pain. I was wondering if anyone else has been put on medication like this and is it safe and did it work. I am hesitant to give her this medication I dont want it to cause problems with her brain.

Also how can I motivate her to do more things. When she is in crisis all she wants to do is lay in bed. The dr says even if it hurts she needs to get up and move around but she refuses. I think she is becoming depresses. Can anyone give me any suggestions. Any help you can offer will be greatly appreciated.

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  • Ade Dotun

    yea the most of my pain is also usually my back and knees, other times its mostly like all of my joints all aching simultaneously, so u cant even pin point where the pain is for real

    Apr 13, 2010

  • Veon A. McGlory

    Well mosst of my pain is in my Spine whent i go into crisis and my chest starts hurting. This is a suggestion but it works for me when im in pain get her a coloring book whatever type of coloring book she wants, and have her color she may say thats for babies i said the same thing now whenever im in pain i color and it takes my mind off the pain!!!!!

    Apr 28, 2010

  • *Shawnii*

    Im like majority of the others...my pain resides in my back, legs, and arms. I am 22 now so pain is something that i have learned to deal with, thankgod! But I know when I was 16 and in pain, laying down and rubbing my legs was all i wanted to do. Its hard when you are younger because its more of a mental thing then a physical thing. The best advice I could give is to simply do what youre doing, and thats be there for her. Its so much easier to deal with pain when you have a good support system. I know I use to go and lay in the bed beside my mom and just fall asleep. Just laying beside her eased my pain & relaxed me. (thats how she knew whenever i was sick also) As far as getting up & walking around, if she can then encourage it, but however added stress on the body only negatively affects us. I know there are times when i have sooo much pain in my legs that walking is nearly impossible & it adds so much stress to the situation when i do have to walk/move. Reading definitely helps at times like that....and increases vocabulary! (& my teachers wonder why I was so smart!) :0) Hope this helps!!

    Jun 12, 2010