Mom to a newborn with Sickle Cell - Sikcell: People living with Sickle Cell2024-03-28T17:23:48Zhttps://sikcell.com/forum/topics/mom-to-a-newborn-with-sickle-cell?commentId=2131823%3AComment%3A64105&x=1&feed=yes&xn_auth=noSo far my little girl is doin…tag:sikcell.com,2016-05-24:2131823:Comment:641052016-05-24T14:14:23.739ZAriane Williamshttps://sikcell.com/profile/ArianeWilliams
<p>So far my little girl is doing good! She's 6 months going to be 7 months pretty soon. We get the results of her genetics test on the 1st of June. I believe she has SS but they want to confirm also they said they noticed her blood cells appear to be very small. I still worry from time to time but the fear is not as nearly as bad as when I first posted this.Thank you again everyone for the words of support and encouragement.</p>
<p>So far my little girl is doing good! She's 6 months going to be 7 months pretty soon. We get the results of her genetics test on the 1st of June. I believe she has SS but they want to confirm also they said they noticed her blood cells appear to be very small. I still worry from time to time but the fear is not as nearly as bad as when I first posted this.Thank you again everyone for the words of support and encouragement.</p> Thank you for sharing with me…tag:sikcell.com,2016-05-24:2131823:Comment:638042016-05-24T14:09:05.916ZAriane Williamshttps://sikcell.com/profile/ArianeWilliams
<p>Thank you for sharing with me :-)! I've been making all of her baby food homemade, so I will give these options a try. I know she is too young for the nuts and strawberries but when she is able to I will use these in her diet.</p>
<p></p>
<p>Thank you for sharing with me :-)! I've been making all of her baby food homemade, so I will give these options a try. I know she is too young for the nuts and strawberries but when she is able to I will use these in her diet.</p>
<p></p> The sure way to do it, is thr…tag:sikcell.com,2016-05-23:2131823:Comment:641002016-05-23T21:16:00.308ZJoy Chinwendu Ezeigbohttps://sikcell.com/profile/JoyChinwenduEzeigbo
The sure way to do it, is through prayers and diet.<br />
<br />
Foods Rich in Thiocyanate are anti-Sickling nutrients....they are the source of organic iron and cleansing natural chlorophyll.<br />
<br />
Here are some of the foods:<br />
<br />
Yam, Plantain, Cassava, Almonds, Cashew nuts, Macadamia Nuts, Peanuts, Strawberries, Banana, Peaches, Cabbage, Turnips, Chickpeas, Sorghum, Millet, Lentils, Lima Beans, Butter beans, Black eyed peas, Raspberries, Mustard, Horseradish, Garbanzo beans, Carrots, Buckwheat and Green leafy…
The sure way to do it, is through prayers and diet.<br />
<br />
Foods Rich in Thiocyanate are anti-Sickling nutrients....they are the source of organic iron and cleansing natural chlorophyll.<br />
<br />
Here are some of the foods:<br />
<br />
Yam, Plantain, Cassava, Almonds, Cashew nuts, Macadamia Nuts, Peanuts, Strawberries, Banana, Peaches, Cabbage, Turnips, Chickpeas, Sorghum, Millet, Lentils, Lima Beans, Butter beans, Black eyed peas, Raspberries, Mustard, Horseradish, Garbanzo beans, Carrots, Buckwheat and Green leafy vegetables.<br />
<br />
In addition, Garlic is a natural antibiotic (sure works wonders)<br />
<br />
Credit to Cheen. This helps so much.tag:sikcell.com,2016-02-02:2131823:Comment:630832016-02-02T16:44:28.669ZMyohttps://sikcell.com/profile/Myoshee
<p>This helps so much.</p>
<p>This helps so much.</p> Thank you everyone for your s…tag:sikcell.com,2015-11-21:2131823:Comment:624922015-11-21T00:40:13.711ZAriane Williamshttps://sikcell.com/profile/ArianeWilliams
<p>Thank you everyone for your support and encouragement. I still am afraid of what the future holds, but I am coming to grips with it a little more and doing all that I can to educate myself. </p>
<p>Thank you everyone for your support and encouragement. I still am afraid of what the future holds, but I am coming to grips with it a little more and doing all that I can to educate myself. </p> I know how you are feeling as…tag:sikcell.com,2015-11-19:2131823:Comment:623342015-11-19T09:22:41.728Zgigi machttps://sikcell.com/profile/gigimac
<p>I know how you are feeling as I am the mother of a 6 year old girl who has SS. A few things i would like to tell you, Firstly you and your baby will be fine, i know it's shocking when you first get the diagnosis but with time you will feel more OK with it. Secondly, education about the condition is key - you need to understand what SS is, what triggers a crisis etc. you know what they say "knowledge is power". for my daughter i came to learn what triggers her crisis and for her it is…</p>
<p>I know how you are feeling as I am the mother of a 6 year old girl who has SS. A few things i would like to tell you, Firstly you and your baby will be fine, i know it's shocking when you first get the diagnosis but with time you will feel more OK with it. Secondly, education about the condition is key - you need to understand what SS is, what triggers a crisis etc. you know what they say "knowledge is power". for my daughter i came to learn what triggers her crisis and for her it is cold and dehydration. I make sure she is always kept warm (not hot since that could also trigger a crisis) and drinks lots of water. I started making her drink water from 6 months so she got used to it, now she willingly drinks over a litre of water daily because it is like second nature to her. She hasn't had a crisis in nearly 3 years now. Lastly, there is lots of research and new drug development going on which provides hope of treatment for our children, so we need to be POSITIVE.</p>
<p>You will be in my prayers. take care of your baby.</p> You have to be strong for you…tag:sikcell.com,2015-11-19:2131823:Comment:624492015-11-19T02:09:03.364Zseulear hopehttps://sikcell.com/profile/seulearhope
You have to be strong for your baby, I have a seven year old and she takes care of me and encourages to be strong when I have a painful crisis, she cheers me up, shows me love and care because I do the same for her . So you need to do the same for her. BE STRONG!
You have to be strong for your baby, I have a seven year old and she takes care of me and encourages to be strong when I have a painful crisis, she cheers me up, shows me love and care because I do the same for her . So you need to do the same for her. BE STRONG! Ariane,
Sickle cell is just a…tag:sikcell.com,2015-11-18:2131823:Comment:623262015-11-18T19:30:27.444ZYoumna Erstadhttps://sikcell.com/profile/YoumnaErstad
Ariane,<br />
Sickle cell is just a disease. Serious but manageable. I have lived with sickle cell disease for 53 years. Yes, they told my mom that I wouldn't survive past 5 years old. She refused to accept it and provided me with the best possible care. Your child should avoid extreme cold, extreme heat and extreme fatigue/tiredness, drink enough liquids, have a nutritious diet, take his/her prescribed medicines consistently and have regular check-ups. And above all, get a lot of love! What is often…
Ariane,<br />
Sickle cell is just a disease. Serious but manageable. I have lived with sickle cell disease for 53 years. Yes, they told my mom that I wouldn't survive past 5 years old. She refused to accept it and provided me with the best possible care. Your child should avoid extreme cold, extreme heat and extreme fatigue/tiredness, drink enough liquids, have a nutritious diet, take his/her prescribed medicines consistently and have regular check-ups. And above all, get a lot of love! What is often forgotten is that stress should be avoided too, so your crying will not help. Be strong for your baby because he/she will live very long! Ariane,
God bless you and you…tag:sikcell.com,2015-11-18:2131823:Comment:623232015-11-18T18:16:48.501ZRaquel Newellhttps://sikcell.com/profile/RaquelNewell
<p>Ariane,</p>
<p>God bless you and your baby ..YOU WILL BOTH BE FINE. God is on the throne. Sickle Cell disease is NOT a death sentence. It is a mere setback, for a comeback! GOD is watching us to see how we cope with the ills of the world, so be steadfast and true to your faith. My 7 yr old was diagnosed in my womb.. amniocentesis. I never heard of this disease until I found out he had it. I was devastated, blamed God, and went through it.. But guess what, my son is healthy and just…</p>
<p>Ariane,</p>
<p>God bless you and your baby ..YOU WILL BOTH BE FINE. God is on the throne. Sickle Cell disease is NOT a death sentence. It is a mere setback, for a comeback! GOD is watching us to see how we cope with the ills of the world, so be steadfast and true to your faith. My 7 yr old was diagnosed in my womb.. amniocentesis. I never heard of this disease until I found out he had it. I was devastated, blamed God, and went through it.. But guess what, my son is healthy and just fine. Every so often he gets a cold and it develops into pneumonia.. or a flu and he is hospitalized with antibiotics for 2 days.. but generally NO pain crisis. Plenty of water all day.. eat fruits and veggies as much as possible.. Vitamins!! and just hugs and kisses.. Your child needs you to be the heavy..so take the news to be vigilant and courageous.. Hydroxyurea is the new drug for children and my son has been on it almost a year. His sick visits have been cut in half. Never forget there is always HOPE!! If you need to talk you can hit me rocnewell@yahoo.com</p>
<p>Raquel</p> She will need you. Just remem…tag:sikcell.com,2015-11-18:2131823:Comment:622542015-11-18T18:11:42.307ZAnnetteKhttps://sikcell.com/profile/AnnetteMatadi
She will need you. Just remember that if you are positive, she will be too. If you are hopeless and fearful then she will too. Love her, guide her, pray for her.
She will need you. Just remember that if you are positive, she will be too. If you are hopeless and fearful then she will too. Love her, guide her, pray for her.