I was Wondering has any one been told that there not in pain that there just ther for the pain meds? - Sikcell: People living with Sickle Cell2024-03-29T09:55:45Zhttps://sikcell.com/forum/topics/iwas-wondering-has-any-one?commentId=2131823%3AComment%3A56574&feed=yes&xn_auth=noomg... this happened to me on…tag:sikcell.com,2013-11-13:2131823:Comment:563962013-11-13T17:30:30.415Zstephanie eccleshttps://sikcell.com/profile/stephanieeccles
<p>omg... this happened to me once before... the nurses weren't mean or anything but no one could understand what happened. I was scared and so were they, they called in so many doctors. It was so creepy. It was like they were all in slow motion and apparently I was speaking like I was in slow motion. That's something I would not like to experience ever again.</p>
<p>omg... this happened to me once before... the nurses weren't mean or anything but no one could understand what happened. I was scared and so were they, they called in so many doctors. It was so creepy. It was like they were all in slow motion and apparently I was speaking like I was in slow motion. That's something I would not like to experience ever again.</p> A nurse once asked me to visi…tag:sikcell.com,2013-11-12:2131823:Comment:565742013-11-12T04:24:00.721ZAnnetteKhttps://sikcell.com/profile/AnnetteMatadi
<p>A nurse once asked me to visit my hematologist often instead of the ER. I had a bad ulcer due to taking meds i guess. One day she chooses to give me morphin straight through the vein at a great speed like as if she was flushing the vein the next thing everything is blurry, i was seeing light, i couldnt speak i became mute. They decide to call my doctor, i can see her from far like she was in clouds. I have never been this scared in my life. All i could hear was the nurse screaming "speak",…</p>
<p>A nurse once asked me to visit my hematologist often instead of the ER. I had a bad ulcer due to taking meds i guess. One day she chooses to give me morphin straight through the vein at a great speed like as if she was flushing the vein the next thing everything is blurry, i was seeing light, i couldnt speak i became mute. They decide to call my doctor, i can see her from far like she was in clouds. I have never been this scared in my life. All i could hear was the nurse screaming "speak", stop acting. Some nurses can be mean, i treat them well with respect because i work with patients too and i know the feeling, but that was worse day of my life.</p> YESSSSSSSSSSSSS. OMG. Beleve…tag:sikcell.com,2013-01-23:2131823:Comment:479032013-01-23T04:41:30.990Znicole petersonhttps://sikcell.com/profile/nicolepeterson
<p>YESSSSSSSSSSSSS. OMG. Beleve it or not i was born with sickle cell but wasn't diagnosed until the age of 27 when i was pregnant with my first child. so for most of my life i was told i just wanted drugs, there was nothing really wrong with me, and also the infamous question "did you fall and hit something?" like i wouldn't remember falling.... when i was younger i would have crisis all the time but no one knew what was wrong with me.. my mother thought it was authuritis...one day she took…</p>
<p>YESSSSSSSSSSSSS. OMG. Beleve it or not i was born with sickle cell but wasn't diagnosed until the age of 27 when i was pregnant with my first child. so for most of my life i was told i just wanted drugs, there was nothing really wrong with me, and also the infamous question "did you fall and hit something?" like i wouldn't remember falling.... when i was younger i would have crisis all the time but no one knew what was wrong with me.. my mother thought it was authuritis...one day she took me to the doctor and after he examined me he asked my mom to step out in the hall..he told her nothing was wrong with me and i just wanted some attention...my mom was furious because she knew that wasn't true we left and never went back.</p>
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<p>i have experienced nasty doctors several times i was even told to get a note from my ss doctor or i wouldnt be treated without it... its really frustrating when you are in pain and no one believes you</p> I am definitely calling the s…tag:sikcell.com,2012-01-31:2131823:Comment:388972012-01-31T23:10:32.380ZDiana Arevalohttps://sikcell.com/profile/DianaArevalo
<p>I am definitely calling the state board on the doctor that looked at me and said " you don't have sickle cell, only black people have sickle cell". I am hispanic. And that doctor doesn't deserve to have a medical license.</p>
<p>I am definitely calling the state board on the doctor that looked at me and said " you don't have sickle cell, only black people have sickle cell". I am hispanic. And that doctor doesn't deserve to have a medical license.</p> This week the same things hav…tag:sikcell.com,2012-01-31:2131823:Comment:390902012-01-31T23:05:44.525ZDiana Arevalohttps://sikcell.com/profile/DianaArevalo
<p>This week the same things have happened to me. I have never ever had a doctor act suspicious of me before. I went to the hospital for the second time that dau because the first time I was released prematuraly by a doctor that didn't know what he was doing. The second time around the doctor was going to discharge me but i felt that my body wasn't ready to be discharged. I felt that there was a very high potential that the pain was going to come back. I told the doctor that I would feel better…</p>
<p>This week the same things have happened to me. I have never ever had a doctor act suspicious of me before. I went to the hospital for the second time that dau because the first time I was released prematuraly by a doctor that didn't know what he was doing. The second time around the doctor was going to discharge me but i felt that my body wasn't ready to be discharged. I felt that there was a very high potential that the pain was going to come back. I told the doctor that I would feel better if i stayed under observation that night because i didnt feel like i was stable enough. Needless to say the doctor was fighting against me on that. I have never had a doctor oppose to a decision like that before. She would look at me and say " Unless there is something you are not telling?" She told me that if I stayed in observation the admitting doctor would probably not give me any pain meds. What!!! Even if I had pain?! </p>
<p>The next day the admitting doctor stopped giving me pain meds through IV and tried giving me methadone: a pain med used when normal pain medications dont work and is most commonly used in patients that are withdrawing from drugs. So aside from the fact that I am mid crisis and oral pain meds don't even do the slightest thing to me hes treating me as though i am withdrawing from pain meds!</p>
<p>I signed the papers to be released from that hospital and took an hour trip to another hospital.</p>
<p></p> where do u live? because I am…tag:sikcell.com,2012-01-27:2131823:Comment:390862012-01-27T23:15:18.240Zstephanie eccleshttps://sikcell.com/profile/stephanieeccles
<p>where do u live? because I am looking for a clinic like that.</p>
<p>where do u live? because I am looking for a clinic like that.</p> I go through that all the tim…tag:sikcell.com,2011-05-25:2131823:Comment:229832011-05-25T18:15:02.102ZAustyn Hart-Tinsleyhttps://sikcell.com/profile/AustynHartTinsley
<p>I go through that all the time. Every time I go to the ER or the hospital I have to have my dad come and check on me. I know that’s weird but the Dr refuse to treat me sometimes and think I’m addicted, as well as they think I’m a druggy looking for a fix. I hate taking meds like the next person because I can’t think straight, I feel nauseas and I fall asleep at random. My BF thinks it’s funny to see me on pain killers because I get so loopy. I even heard one of my nurses one time tell the Dr…</p>
<p>I go through that all the time. Every time I go to the ER or the hospital I have to have my dad come and check on me. I know that’s weird but the Dr refuse to treat me sometimes and think I’m addicted, as well as they think I’m a druggy looking for a fix. I hate taking meds like the next person because I can’t think straight, I feel nauseas and I fall asleep at random. My BF thinks it’s funny to see me on pain killers because I get so loopy. I even heard one of my nurses one time tell the Dr She didn’t want to give me meds because she thought I was a druggy. That pisses me off so bad. They have no idea what its like to look healthy and feel like crap.</p> Hey Veon, as a joke keep a co…tag:sikcell.com,2011-04-20:2131823:Comment:207662011-04-20T20:18:07.399ZP.Allen Joneshttps://sikcell.com/profile/PAllenJones
<p>Hey Veon, as a joke keep a copy of Time magazine issue March 1, 2011 "Understanding Pain" with you when you go to the doctor/hospital. </p>
<p>If anyone questions your pain or your need for meds, whip out the magazine and let them "borrow" it. They'll get the message.</p>
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<p><a href="http://sicklecell-ourvoice.blogspot.com/2011_03_01_archive.html" rel="nofollow" target="_blank">Understanding Pain…</a></p>
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<p>Hey Veon, as a joke keep a copy of Time magazine issue March 1, 2011 "Understanding Pain" with you when you go to the doctor/hospital. </p>
<p>If anyone questions your pain or your need for meds, whip out the magazine and let them "borrow" it. They'll get the message.</p>
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<p><a rel="nofollow" target="_blank" href="http://sicklecell-ourvoice.blogspot.com/2011_03_01_archive.html">Understanding Pain</a></p>
<p><a target="_self" href="http://storage.ning.com/topology/rest/1.0/file/get/1930039647?profile=original"><img width="301" src="http://storage.ning.com/topology/rest/1.0/file/get/1930039647?profile=original" height="248" class="align-full"/></a></p> I JUST JOINED THE SITE SO IM…tag:sikcell.com,2011-04-14:2131823:Comment:198802011-04-14T05:12:09.087ZYarkeya Knighthttps://sikcell.com/profile/YarkeyaKnight
I JUST JOINED THE SITE SO IM A YEAR LATE BUT, I WAS NEVER IN THE HOSPITAL UNTIIL I WAS AROUND 20 AND IT GOT WORST FROM THERE, I THINK ALL SICKLERS WHO ARE GROWN DEAL WITH THE UR A DRUG ADDICT BECUASE SOME PEOPLE ARE JUST STRAIGHT IGNORANT... HOWEVER I USE TO BE LIKE IM NOT GOING TO THE HOSPITAL CUZ 1 MY FAMILY THOUGHT I WAS GOING TO MUCH AND THEN U GET DOGGED BY DOCTORS AND NURSES ON HOW MUCH MEDICINE U NEED AND THEN THEY THINK YOUR FINE CUZ YOUR NODDING OF OR SLEEP..THEY ALWAYS SAY OH WELL U…
I JUST JOINED THE SITE SO IM A YEAR LATE BUT, I WAS NEVER IN THE HOSPITAL UNTIIL I WAS AROUND 20 AND IT GOT WORST FROM THERE, I THINK ALL SICKLERS WHO ARE GROWN DEAL WITH THE UR A DRUG ADDICT BECUASE SOME PEOPLE ARE JUST STRAIGHT IGNORANT... HOWEVER I USE TO BE LIKE IM NOT GOING TO THE HOSPITAL CUZ 1 MY FAMILY THOUGHT I WAS GOING TO MUCH AND THEN U GET DOGGED BY DOCTORS AND NURSES ON HOW MUCH MEDICINE U NEED AND THEN THEY THINK YOUR FINE CUZ YOUR NODDING OF OR SLEEP..THEY ALWAYS SAY OH WELL U MUST FEEL BETTER CUZ UR SLEEPING I REALLY REALLY WANT TO SAY BACK NO DUMB BITCH IM SLEEP CUZ I JUST GOT 2MG OF DILUADID AND 50MG OF BENYDRYL ALL THRU MY PORT BUT IM AWAKE NOW AND THIS SHIT HURT...BUT I DONT WANT TO GET THE IGNORANT BLACK PERSON....NOW I DONT CARE WHAT ANYONE THINKS CUZ THEY DONT KNOW MY DAILY STRUGGLE IF U THINK IM NOT IN PAIN OR IM ADDICTED OKAY THATS FINE BUT YOU ARE GONE MEDICATE ME OR ILL BE SCREAMING AND CRYING REALLY LOUD AND IF U DISCHARGE ME ILL BE BACK. BUT ALL SICKLERS SHOULD FIND A DOCTOR WHO UNDERSTANDS MY HEMATOLOGIST HERE IN AZ IS NOT WAT I LOOK FOR IN A HEMATOLOGIST SO IM LOOKING FOR A NEW ONE BUT MY PRIMARY CARE DOC IS SOOOO GREAT I CAN CALL HIM B4 I GO TO THE ER AND HE HAS ORDERS FOR ME WHEN I GET THERE THEN HE WILL COME SEE ME IN THE MORNING AND IF I HAPPEN TO GO TO THE OTHER HOSPITAL DOWN THE ROAD HE CALLS THERE AND WILL SEND HIS WIFE WHO IS A DOCTOR AT THAT HOSPITAL. SO PLZ PLZ ALL MY SICKLERS FIND A GOOD DOC AND DONT STAY IN PAIN CUZ OF WHAT SOMEONE ELSE THINK...SCREW THEM ALL, ONCE THEY SEE U ADVOCATE FOR YOURSELF AND U JUST DONT TAKE WAT THEY GIVE YOU THEY WILL ALL COME AROUND. GOD BLESS YOU ALL!!! Hi! Shawnii that's great to h…tag:sikcell.com,2011-04-08:2131823:Comment:191682011-04-08T16:02:16.440Zsandrahttps://sikcell.com/profile/sandra
Hi! Shawnii that's great to have a sickle cell clinic where you live. What state areyou from
Hi! Shawnii that's great to have a sickle cell clinic where you live. What state areyou from