Comment

Comment by Jamilla Sealy on November 11, 2010 at 5:58pm

Well Kavonda, a Doctor did diagnose me about when I was 4 yrs old and that's when I was having a crisis. It happened when I came from the beach around Christmas time and then I started to feel the pains in my joints. Well to deal with the pains my parents used heat on the joints and give me pain meds and most importantly i had to drink lots of water. Water equals oxygen. He needs to eat well. I am big on exercise but used to overwork myself; then I would end up in crisis. Also when I go out like to the beach r a pool I need to walk with my meds just in case. Hope this helps.

Comment by P.Allen Jones on October 18, 2010 at 12:54am

My son has the trait, he has nose bleeds, headaches, some aches in joints but nothing like the real deal.

Comment by Kavonda Jordan-Dean on October 14, 2010 at 9:03am

Good morning Jamilla, I was excited to read your comment. When did you find out you were experiencing crises? Did a doctor diagnose you with this? How did you feel and deal with the pain once you discovered that you were having crises? I know that I may be asking you a lot of questions but I need information to help my son. I have the disease and have suffered all my life from the crises and the doctors seem to be deal with me but I have a hard time getting them to listen to my son. Thank you for your comment, now I know that I am not just imagining his pain.

Comment by Jamilla Sealy on October 14, 2010 at 5:54am

Hi Kavonda, I have the trait only but I still suffer from the pains. When I was young i ended up in crisis I would say 3-5 times a year. It was awful.